About Us
Vision Statement
To improve the quality of life of people living with PWS and help spread awareness among medical and professional providers.
Vision Statement
Empower people who are living with PWS and their families.
Suppport Us
Donations can be made to the following account:
Bank: Bank Misr
Account Name: Egyptian Foundation for Health Care for Patients with Chromosome 15 Disorder (Prader Willi Syndrome)
Account Number: 1090001000007415
Swift Code: BMIS EG CX XXX
IBAN: EG35000201090109001000007415
Event Highlights
Virtual Workshop
1st – 2nd October 2025
Onsite Family Workshop
3rd – 4th October 2025
Location
Cairo, Egypt
Meet Our Speakers
Dr. Tony Holland
Emeritus Professor at Cambridge, is a psychiatrist and researcher focused on intellectual disabilities and Prader-Willi syndrome. He collaborates internationally, supports charities, and was awarded a CBE for his services.
Lynn Garrick, MSN, RN
Lynn, a registered nurse and mother of five, directs programs at AME Community Services, supports PWSA | USA as Medical and Research Coordinator, and has long served Minnesota’s PWS Association.
Kim Tula, MS, CSW
Kim, a Certified Social Worker, has supported individuals with PWS since 1990. At PWSA | USA, she serves as Family Support Counselor and directs national youth, adult, and sibling programs.
Dr. Patrice Carroll, LICSW
Directs PWS services at Latham Centers. With 25+ years’ experience, she develops person-centered programs, specializes in sensory-based interventions, and contributes nationally through advisory boards supporting individuals with PWS.
Kristi Rickenbach
Kristi Cole Rickenbach is Parent Support Coordinator for PWSA | USA and President of PWSA Minnesota. As a mother, advocate, and nonprofit leader, she empowers families affected by PWS.
Justice Rickenback
Justice Rickenbach, living with PWS and narcolepsy, is an advocate, speaker, and writer raising awareness, educating communities, and promoting improved treatments through national rare disease organizations.
Dorothea Lantz
Miami-based Realtor and Community Engagement Specialist with PWSA | USA, advocates for PWS awareness. A dedicated parent mentor and volunteer, she combines real estate expertise with strong community and leadership involvement.
Elaine Towle
Oncology consulting services supporting practices, institutions, pharma, and networks, specializing in operations, efficiency, revenue, value-based care transformation, and strategic planning.
Harold J.P. Van Bosse MD, FAAOS
Pediatric orthopaedic surgeon, has supported the PWS community for 25 years. He specializes in spine and orthopaedic care, serves on advisory boards, and educates families internationally
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Dr. Deepan Singh
Psychiatrist and researcher, is Vice-Chair at Maimonides Medical Center. An international expert on PWS behaviors, he has published extensively, authored a clinical guide, and serves on multiple advisory boards.
Stacy Ward, MS BCBA
Stacy Ward, CEO of PWSA | USA, brings 30 years’ ID/DD experience, expanding family support programs, advancing education advocacy, and leading initiatives supporting individuals and families affected by PWS.
Dr. Kasey Bedard, PhD BCBA-D
Assistant professor and practicing behavior analyst, researches applied behavior analysis interventions supporting individuals with Prader-Willi syndrome through small-scale studies and large randomized clinical trials.
Dr. Shokery Awadalla
Dr. Shokery Awadalla, pediatric endocrinologist and professor in Bogotá, specializes in growth, thyroid, and puberty disorders, actively contributing to pediatric endocrinology societies in Colombia and Europe.
Charles Conway
Charles, retired Army Lieutenant Colonel, advocates passionately for PWS awareness. A dedicated parent mentor and community leader, he supports families, mentors fathers, and co-organizes the PWS BIPOC Affinity Group.
Dr. Mohamed Hamdy
Dr. Mohamed Hamdy is a pediatric physiotherapist and Intermediate B–certified DMI practitioner leading therapy sessions at Hope Pediatric PT Center in Alexandria, Egypt
Marguerite Walker
Marguerite Hughes
Dr. Nick Finer
Dr. Farah Almadhoun
Dr. Farah Almadhoun, MSc Genetic Counselor, works in Amman, Jordan specializing in reproductive, prenatal, pediatric, and cancer genetics at King Hussein Cancer Foundation.
Prof. Dr. Mona Salem
Professor of Metabolism and Diabetes, Department of Pediatrics, Ain Shams University
President of the Egyptian Society of Pediatric Endocrinology and Diabetes
Dr. Destiny Pacha, EdD
Dr. Destiny Pacha, education specialist and EmpowerED Solutions founder, consults and trains schools and families on PWS. She researches inclusive practices, authored an award-winning children’s book, and advances awareness nationally.
Dr. Susanne S.Blichfeldt
Dr. Susanne Blichfeldt, pediatrician and PWS expert, has 30+ years’ experience in clinical care, research, and advocacy, co-founding Denmark’s PWS association and advising international organizations.
Dr. Mona Atyea
Professor of Pediatrics, Diabetes and Pediatric Endocrinology, Cairo University
Sarah Kasaby
mom to a 5 year old warrior with PWS
Malika Saidy
Mom to a 5 year old warrior with PWS
Walaa Ismael
mom to a 17 year old warrior with PWS